January 5, 2009

Don't Give in to Gossip

It is so incredibly sad to hear that anyone has lost a child...I am referring to John and Kelly Travolta. Though it may be tempting to get caught up in the autism-related craziness online regarding Jett Travolta I encourage you not to engage in it. The news channels are touting uneducated opinions as fact, but the facts are not out there and it is not the public's business to know. (Yes, I know they are public figures, but they are also real people, really mourning..)

If you are a parent of a child with Autism, please be responsible when family/friends bring up this hot topic. Remember:

1. Autism is not necessarily something that is treated with medication. (It is typically things like ADD, AD/HD, and separate issues relating to the whole picture of Autism.)

2. Autism and Epilepsy are not the same thing, nor are they even 'hand in hand'. They are two different conditions that can coincide in some people. (Think brain tumor and frequent migraines on this one...just because your head hurts does not mean you have a tumor.)

3. The people pushing this agenda are mainly those who believe you can cure Autism. The reports are saying 'if they had accepted this, he would not be dead now'...seriously?

4. Focus your politics and advocacy where it counts... towards lobbying for healthcare benefits for our children. Towards making sure that they are progressing--not in Hollywood, but on Capitol Hill. Towards equal opportunity in schools... towards teaching your community about children on the spectrum.

5. Credibilty is a valuable thing...

13 comments:

Bella Casa said...

I agree.

I remember hearing about their son having Asperger's Syndrome a couple of years ago and wondering why they were not more vocal.

But when he died and I was talking to my dh about it, I said all that did not matter anymore and it never really did. It was their decision to keep whatever he had private and I respect that, especially now.

Rest in peace, sweet Jett.

Jenni Jiggety said...

I am so sad for their loss and I am a little disgusted that people have rushed to judge them so soon after their child's death!

Nikowa Lee {Quirky Mom} said...

AMEN & even if there were medications that would "help", not everyone wants their children medicated!

Chris Worthy said...

Great post!

A Bishops Wife said...

Great post.

I fully support your view on this.

Aunt Julie said...

The news media...and others, quite frankly...can be so irresponsible and shallow. Gossip for gossip's sake, to satiate a shallow soul, is what I say. I read a post over at The Scholastic Scribe this morning that talks about people's perceptions in a slightly different light. Shameful.

Monica said...

How perfect that you've said this. I cannot possibly keep in tune with the media. It's so negative and basically mean when it comes to these things. Actually, anything lately.

The poor Travoltas.. honestly, my heart goes out to them.

Melissa the Mindless Mommy said...

Bravo Angela, bravo!! My son is both on the autism spectrum and has epilepsy but my daughter only has autism so they definitely don't go hand-in-hand. This is a sad story and this is definitely not a time to push a curebie agenda. Advocacy for the future is key.

Domestic Goddess said...

Well said, Angela. I couldn't have said it better. Whether or not he had autism had nothing to do with the fact that they lost their child, unexpectedly, and they are mourning. It is no one's business what was "wrong" or "right" with their child.
If anything ever happened to my Bugaboo (also with epilepsy and autism)I hope folks wouldn't judge me for not trying XYZ. I'm just a parent, trying to do the best that I can with the resources I have. They are no different. They loved their child and chose the best they could for him, according to what worked best for their family. There is no shame in that.

My Autism Insights said...

You're spot on with this post. well said, and thanks for saying it. I saw a video that had been taken a few days before Jett's accident, and you could clearly see the protectiveness and caring in this family. It's not right for anyone to turn their pain into an 'issue.'

painted maypole said...

i haven't heard any of the negative stuff, but this was great and very positive.

I can't imagine their heartbreak...

Tracy Berta-daughter to the King, wife, mother, speaker, writer said...

Greetings, Angela!

First time here....

I didn't realize there was negative press about this... Just saw about 10 seconds that their son had passed away. How HORRIBLE that the press would stick their nose in- especially when a family is grieving ("stars" or NOT!).

Well said- especially about the meds.

Many blessings, Angela!

Look forward to stopping by again soon.

Tracy

Amy© said...

Really good post, Angela.